Avery and Morgan (twins, 13), were born early and spent about a month in the NICU. We assumed their early troubles were from being preemies. By the time they were one, however, it was clear that much more was going on with them. Specialists started getting involved and traveling across the country for medical care became part of our routine. When I was surprisingly pregnant with Taylor (now 9), the twins were diagnosed with mitochondrial disease. Taylor ended up with the same diagnosis shortly after birth. Thankfully, our team of specialists helped get all three girls the care they needed. When the time and money spent traveling across the country became too much for us to handle, Help Mito Kids stepped in to assist.

A few years down the road, during an extensive inpatient stay for Taylor at our local hospital, we met an incredible doctor from Stanford who encouraged us to transfer the girls’ care. It is still a big trip, but at least it doesn’t involve flying with the insane amount of medical supplies or exposing them to airplane germs.

Things like tube feeding, IV nutrition, IV immune support, specialized formulas and diets, compounding pharmacies, specialty medications, diapers for teenagers, learning disabilities, growth concerns, cardiac issues, and so much more have all become part of our daily lives. It’s isolating and overwhelming, but the girls are thriving due to all the specialists involved in their care. We would not have all of the support for our girls without the assistance of Help Mito Kids.

Thank you for considering a donation to this amazing non-profit that helps so many families like ours.