SCR 104 Recognizes Mitochondrial Disease Awareness Week
SACRAMENTO: In late August, the State Legislature took action to unanimously pass a resolution designating the third week of September every year as Mitochondrial Disease Awareness Week. Senate Concurrent Resolution 104, authored by Senate Republican Leader Bob Huff (R-Diamond Bar), and co-authored by Senator Ted Gaines (R-Roseville) calls attention to the fact that every 30 minutes a child is born who will develop Mitochondrial Disease by age 10, yet the debilitating medical condition most people have never heard of, can dramatically shorten a child’s life. Mitochondrial Disease is not –unfortunately just one disease – it usually includes an umbrella of 100-200 disorders, which is why it is so difficult to diagnose and treat.
Because so little is known about the disease, there are only a few hospitals in the world that offer treatment. As a result, affected families are forced to travel on a regular basis to seek answers and receive treatment, quickly exhausting financial resources.
To commemorate the resolution’s passage, Senator Ted Gaines presented a framed State Concurrent Resolution and certificate of appreciation to The Help Mito Kids Foundation in the State Capitol. Help Mito Kids, Inc. (501(c) 3) was founded by Michael and Carol Pomares. Carol (recently retired Oak Ridge High School Spanish Teacher) felt she had to replace anxiety with action after the discovery that all three of her granddaughters were diagnosed with the disease back in 2009. Since then, Help Mito Kids has raised over $50,000 to help ease travelling expenses and has connected around 20 families all over the United States with skilled doctors. I addition to helping the families with their out of pocket expenses, the organization contributes to the Mitochondrial Disease Research at Lucile Packard’s Children’s Hospital at Stanford.
Help Mito Kids sponsors numerous events throughout the El Dorado Hills Township to help raise awareness and raise critically needed funds for research and shared financial support. Pictured above, Senator Gaines and Beth Hummel, Legislative Aide for Senator Bob Huff, offer thanks to Carol Pomares and Help Mito Kids Board Member Luz Zeagler, for their dedication to improving the quality of life for people living with Mitochondrial Disease until a cure is found.
For information regarding how you can participate in the Help Mito Kids Annual 5K FunWalk/Run on April 18th in the El Dorado Hills Town Center, visit HelpMitoKids.org.
Mighty Do-Gooders Run 5K for Mito Kids
Participants arrived early at the Town Center in El Dorado Hills for the 5K run benefiting the Mito Kids Foundation. This was a combined philanthropic effort from both the Interact Club from Oak Ridge High School, led by student leader Nick Bennet, and the El Dorado Hills Rotary Club. The purpose of this event was to bring awareness about Mitochondria disease to the community and help fill the gap of the expensive costs of treatment that insurances do not cover. The Nugget Market fueled the participants with healthy snacks who were already energized by Zia’s coffee. Runners and walkers took off from the starting line with announcer Josh Nisbet from The Poster Child Band, who kept everyone’s enthusiasm high. The kids’ faces were all smiles as they enjoyed the additional activities including face-painting, bubbles, and temporary tattoos. Guests of honor for the event, Avery, Taylor, and Morgan Spry, are three sisters suffering from Mitochondria disease. Raffle prizes donated to the cause included an autographed 49ers football and a gift basket from Snap Fitness. Swagherr, a women’s clothing boutique, was a perfect vendor for an already perfect day. Special thanks to Chili’s and Coldstone, which donated a portion of their sales to the Mito Kids Foundation. Additional sponsors included Mercedes Benz of El Dorado Hills, Oncore Consulting, and Wells Fargo. This event raised more than $10,000 for the Mito Kids Foundation which will change the lives of many families affected by the disease.
NEWS FROM 2013
On Saturday April 27th, over 400 participants attended the 4th Annual Mito Kids 5K Walk/Run held at Town Center in El Dorado Hills, Calif.
This year’s main fundraiser was the most successful! The funds raised go directly to fund mitochondrial disease research at Stanford University and to provide aid to families with children who have mitochondrial disease. Many of the families’ costs are not covered by health insurance or Medicaid.
The morning began with Zumba dance warm-ups . Then the runners took off, to lots of music playing, followed by the walkers. After everyone finished, there were many prize giveaways and a group photo. Everyone was decked out in bright green – wristbands, necklaces, tattoos, face paint, sprayed green beards and hair. It was a lot of fun for everyone who attended.
We could not have done it without the support of all our sponsors. The list was tremendous and we thank all the benevolent people who gave so much to this worthy cause. A huge thank you, also, for all the many volunteers who helped organize and work at the event.
Mark your calendars! Next year’s walk/run will be on Saturday, April 26, 2014. Hope to see you there!
NEWS FROM 2012
“Michael Pomares, founder and president of the local MitoKids organization, explained that the group organizes one major fundraiser per year. This year’s funds raised from the 3rd annual 5K Walk/Run at the Town Center in El Dorado Hills on April 14th will help families with a child with mitochondrial disease…” [read more…]